« Treating PI

Questions to Ask Your Doctor

Testing for primary immunodeficiency (PI) can take many months—and after the diagnosis, there are decisions to make. Here are some questions to consider asking your doctor once you’ve been diagnosed.

Questions to Ask About Treatment

  • What is the specific type of primary immunodeficiency I have?
  • What therapies are available to treat it?
  • Which treatment do you recommend and why?
  • Are there alternatives to this approach?
  • How long will treatment be required?
  • How will I know if my treatment is working?
  • Will I be able to change treatment?

Questions to Ask About Living With PI

  • Who will be my main point of contact—you or my primary care doctor?
  • Can I do anything to help prevent infections?
  • Are there any restrictions on my activity level or diet? Is there a specific medical diet or are there nutritional guidelines you would recommend?
  • Can I get all of the recommended vaccinations?
  • Is there a known genetic cause for this type of PI? If so, how will I know if other family members need to be tested?
  • What are the long-term consequences of PI?
  • Do I need to see any other specialists?
  • Who should I call if I get sick?
  • I'm a U.S. resident—can I get help with details of my insurance?

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Questions To Ask Your Doctor About Primary Immunodeficiency Questions to Ask
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