« Organizations & Online Forums

& Support

Here are some of the patient organizations that work to build awareness of primary immunodeficiency (PI) and offer support to individuals and families.

Immune Deficiency Foundation logo

Immune Deficiency Foundation

The Immune Deficiency Foundation (IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.

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Jeffrey Modell Foundation logo

Jeffrey Modell Foundation

A global patient organization devoted to early and precise diagnosis, meaningful treatments and ultimately, cures — through clinical and basic research, physician education, patient support, advocacy, public awareness and newborn screening.

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Additional Organizations for PI Patients

Online Forums

Share experiences and offer support on these online communities.

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