« Organizations & Online Forums

Online
Forums

These online communities have been created for people living with primary immunodeficiency (PI) to share experiences and offer support.

Immune Deficiency Foundation (IDF) IDF Friends logo

Immune Deficiency Foundation (IDF) IDF Friends

The Immune Deficiency Foundation created IDF Friends, a private social community created exclusively for patients and family members living with PI. Members can connect with others in the discussion forum, group forums and chat rooms and share experiences through forum posts, pictures, and videos.

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The Jeffrey Modell Foundation (JMF) Message Board

Jeffrey Modell Foundation (JMF) Global PI Village®

The Jeffrey Modell Foundation, a global patient organization dedicated to Primary Immunodeficiency, has created a Global PI Village® where patients, physicians, families and friends can visit the Internet Café to connect and share experiences at the Social Hub.

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International Patient Organisation for Primary Immunodeficiencies (IPOPI) Forums logo

International Patient Organisation for Primary Immunodeficiencies (IPOPI) Forums

The International Patient Organisation for Primary Immunodeficiencies, an organization dedicated to improving awareness and access to early diagnosis.

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Living with PI

Resources to help you or someone you love stay healthier and learn from others’ experiences.

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