« Patient & Caregiver Resources

Adults With Primary

Some adults with PI may not have symptoms until reaching adulthood. Others have symptoms but remain undiagnosed for many years.

After the relief of diagnosis, adults living with PI have several hurdles to cross, including challenges in the workplace.

Talking to Your Employer

You may need to decide whether or not to have a discussion with your employer about your diagnosis. Before you do, it's a good idea to review your rights under the U.S. Department of Labor's Family and Medical Leave Act (FMLA) if you need to take time off due to serious illness or disability.

Here's a sample letter to an employer to help you have that discussion.

Employer Sample Letter

Employer Sample Letter Notifying Employee With Primary Immunodeficiency


Got a question?

Our Patient and Nurse Advocates can help answer your questions about living with and managing PI.

Ask an Advocate