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Stories from
the PI Community

People with primary immunodeficiency (PI) are unique in many ways. But they also have one thing in common. They know what it's like to live with this rare disorder, and they are generous about sharing what they've learned with others. Read our stories and, if you feel inspired, tell your own story.

Celina's Story

Read an interview with this talented 20-year old author/ illustrator of a book about overcoming the challenge of living with PI.

Emma's Story

Emma, a little girl with an inspiring attitude, tells why she created The ABCs of Kids Like Me, a book you can request for your child.

Charlie's Story

Dana, the mother of three children with PI, tells how she and her son, Charlie, created My IVIG Book to help children understand what IVIG is all about.

Story Archives

Discover more stories about people like you living with PI.