Primary immunodeficiency (PI) diseases can be diagnosed in individuals of any age. People with some types of PI may not have symptoms until they are adults. It’s also possible for people to have symptoms but remain undiagnosed for many years.1

After the relief of diagnosis, adults living with PI have several hurdles to cross. First of all, there are insurance issues to deal with. Baxter’s GARDian program provides several different kinds of insurance support.

PI and Your Employer

You may also need to decide whether or not you want to have a discussion with your employer about your diagnosis. Before you do, it’s a good idea to review your rights under the U.S. Department of Labor’s Family and Medical Leave Act (FMLA).

To help you with talking points, we’ve created a sample letter to an employer which you can download.

Find an Immunologist

Visit the American Academy of Allergy, Asthma, and Immunology (AAAAI) Physician Referral Directory or the Jeffrey Modell Foundation (JMF). Find an Expert Immunologist.

Learn More
  1. Blaese RM, Winkelstein J. Patient & Family Handbook for Primary Immunodeficiency Diseases. Towson, MD: Immune Deficiency Foundation; 2007:10.