Primary immunodeficiency (PI) diseases can be diagnosed in individuals of any age. People with some types of PI may not have symptoms until they are adults. It’s also possible for people to have symptoms but remain undiagnosed for many years.1
After the relief of diagnosis, adults live with PI have several
hurdles to cross. First of all, there are insurance issues to deal
PI and Your Employer
You may also need to decide whether or not you want to have a discussion with your employer about your diagnosis. Before you do, it’s a good idea to review your rights under the U.S. Department of Labor’s Family and Medical Leave Act (FMLA).
To help you with talking points, we’ve created a sample letter to an employer which you can download.
- Blaese RM, Winkelstein J. Patient & Family Handbook for Primary Immunodeficiency Diseases. Towson, MD: Immune Deficiency Foundation; 2007:10.