School staff and community may lack awareness of PI diseases.
Children may miss school due to illness and IgG infusions.
It’s important to maintain ongoing communication, since children’s symptoms and treatment for their PI disease may change over time.
Educating the school community about PI can prevent misconceptions, including the fear that the disease may be contagious.
Because children with PI have weakened immune systems, they are likely to acquire infections when exposed to sick children.
Children with PI disease may need medication or treatments, such as an inhaler or nebulizer, during the school day.
Children may require modifications to the classroom environment and/or extra time for tutoring and missed schoolwork.
This is the most common issue school officials face related to children with chronic illness.
Your student with PI may be rejected by peers or develop low self-esteem.
Shire would like to thank Rainbow Babies and Children’s Hospital for sharing this information adapted from 11 Common School Issues, originally published as part of their School Outreach Program for Primary Immune Deficiency, with generous grant support from Caremark, Coram Healthcare, and Schubert Center for Child Development.
Adapted and reprinted with permission of Kimberly Duff, RN, BSN, Shire Senior Clinical Consultant, and Tonya Palermo, PhD.
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