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Living with
Primary Immune Deficiency
For
people with PI, and for the parents of children with PI, there
are special issues to consider in selecting and managing work.
In selecting a field of work, people with PI will want to consider
issues of exposure – to people, to illness and to environmental
factors. Also, the physical demands of the work as well as stressors
should be considered. The availability of insurance coverage is
another important factor to consider.
People with PI and parents of children with PI will need to work
with their employer to ensure that there is accommodation for
healthcare needs. For example, patients may need to arrange time
off work for their infusions. In many cases, working with employers
begins with education, as many employers are not familiar with
PI.
To help with both education and accommodation issues, Baxter
has developed two letters which you may print, complete and share
with your employer.
Letter to an Employer 1 (Employee
with a Child who has PI)
Letter to an Employer 2
(Employee with PI)
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